Friends With FOP

Posted by Karen Today I'm going to talk about Fibrodysplasia Ossificans Progressiva on television.  People with FOP have been on TV a number of times over the past several years.  Mostly it's been on news or educational-type shows, but there was an occasion when a made-up character had FOP. The fictional character appeared on an episode of Grey's Anatomy.  It was on TV in the early spring of 2007; I think March.  I saw that episode, but get this - it was before my daughter Miranda's diagnosis with FOP.  Just about a MONTH before...  In the episode, a woman with FOP was brought to ...

Posted by Karen After my blog on websites related to Fibrodysplasia Ossificans Progressiva a couple of weeks ago, I realized there were a few I left out. I did mention one Dutch site, and there is a second one as well.  The Dutch FOP group has a site at www.fopstichting.nl.  Additionally, there's a German based European FOP group which has a site at www.fop-ev.de.  The latter site has a section containing mini-bios of some of the members.  I always enjoy reading those.  I think the Brazilian FOP group also has a website, but I couldn't find it today. ...And no, I don't read ...