Friends With FOP

Posted by Karen April 19, 2010 will mark the third anniversary of my daughter Miranda's diagnosis with Fibrodysplasia Ossificans Progressiva. [caption id="attachment_871" align="alignnone" width="300" caption="Here's Miranda just before the FOP bomb detonated."][/caption] A lot of FOP has happened in those three years.  When Miranda was first diagnosed, we learned that many kids with FOP don't have significant joint restrictions until their late teen years, or even twenties.  I clung to that, telling myself it would surely be the case for Miranda, and she would have not much beyond flare-ups in her back and neck for several years.  Guess what?  Nope, FOP had different plans ...