Posted by Karen
A couple of weeks ago, Suzanne blogged about her daughter Erin’s preschool graduation. On Friday, June 25, it was Miranda’s turn in the spotlight!
For the past two years, Miranda’s been attending a daycare a block from where we live, and about a year ago, the centre started up a new Montessori preschool. We were [...]
Posted by Karen
This week, the “19th Annual Report of the Fibrodysplasia Ossificans Progressiva (FOP) Collaborative Research Project” was released to the public. This year’s report was written by Dr. Fred Kaplan, Dr. Robert Pignolo and Dr. Eileen Shore of the University of Pennsylvania. While much of the work they describe was carried out at the [...]
Posted by Karen
This was the weekend of the big ride…
I blogged here a while ago about how Vanessa Herce, who’s sister Valerie Herce has FOP, was planning a bike trip from Niagara Falls to Toronto, Canada to raise money to support FOP research. I’m delighted to tell you that Vanessa accomplished her goal this weekend, and then [...]
Erin did it…completed two full years of preschool! I would love to publicly thank Ms. Tina and Ms. Sally at Cottage Lake Elementary for teaching Erin so many wonderful things. Erin had her moments but really enjoyed going to school. It’s amazing to have a child at 4 years old learning how to read. My [...]
Posted by Karen
This is an interesting and hopeful time of year for the Fibrodysplasia Ossificans Progressiva community. I look forward to June because it’s usually when we get to see the annual research report by the Centre for Research into FOP and Related Disorders, aka the “FOP Lab”. I did a blog last year about the 2009 report, [...]
Posted by Karen
We’ve been having one of those great early summer weekends where the weather is nice, there’s cool stuff to do and all is right with the world. The kind of weekend you remember fondly when you’re older as “the good times”… The concerns of Fibrodysplasia Ossificans Progressiva barely registered on us this weekend [...]
