Friends With FOP

Posted by Karen We're coming into the home stretch...  One more week, and then school begins!  Since Miranda will be starting kindergarten, it's an especially exciting time at our house. It's funny; Miranda herself is pretty low key about the whole thing.  She's been in daycare/preschool, she knows lots of the kids she'll be at school with, and she knows how to read...  So what's the big deal?  ;-) Lots of times when kids start kindergarten, it's really the parents who are more worked up about it than anyone.  Lots of tears and (to quote my blogger friend Amber at Strocel.com) handwringing.  I ...

Posted by Karen Yesterday we returned home after a really terrific summer vacation.  We had been away for just over 2 weeks, spending the first week in Calgary with my family, and spending the second week at a condo we booked at the Panorama Mountain Resort. As I commented in my last blog entry, I think my daughter Miranda really needed this vacation, given all the extra appointments we've had to do recently to get her ready to start kindergarten this fall.  It was time for Miranda to get away from all the focus on her Fibrodysplasia Ossificans Progressiva.  Fortunately, everything worked ...

Posted by Karen In recent times, Miranda's had to have a bunch of appointments and assessments related to her Fibrodysplasia Ossificans Progressiva.  This is all in connection with starting school in the fall.  I know it's all necessary, but I can see she's getting really tired of it.  Miranda's just not cooperating as well with these things as she used to.  It think it's just been too much lately. And so, vacation came JUST at the right time...  Time to get away from it all, and forget about FOP complications.  We're doing the same trip this year that we've done the past 3 ...