Oh how I love Halloween! I always have the best intentions to really go all out on the house decorations. Unfortunately like the past Halloweens, we carved some pumpkins and then put out a self-serve candy bucket. Our children became Indiana Jones, Princess Liana from Barbie’s Diamond Castle (just in case someone didn’t know), and some zombie-like creature. Erin REALLY got into Halloween this time around. She did really good. All the homes here have agrigate steps leading to the front door. Some houses like us have three steps but then there were other homes with 10 steps. I was supposed to take video of the festivities but I had to hand over that duty to Uncle Sean. I had to carry Erin up and down steps at every house. She would yell “Up please!!!” as she approached stairs. If we came to a house that was a bit scary, she wouldn’t let go of my hand. Then as her bucket started to get heavy, that got passed to me to carry.
The good news today is that Kate stopped by with a rep from Olympic Pharmacy. The rep brought two different models of strollers/push chairs for special needs. After about a 45-minute discussion of Erin’s needs, we decided that the EaSys models would work better than the Serval. Serval strollers are used quite a bit with children with Cerebral Palsy. They look like they are one step below of a wheelchair. The EaSys models look more like strollers. Luckily we were allowed to keep the EaSys Swifty model to test drive and we used it tonight. We REALLY liked it. Erin totally enjoyed riding in it (which we were surprised) and we really liked not having to carry her. We get to keep it for a week. Then I will talk with the rep about the pros and cons of the stroller. Both Kate and the rep highly recommended an EaSys model that is an upgrade to the Swifty. The EaSys Jazz can fully recline in addition to the seat base tilts which is a great feature for Erin.  We’re hoping to see what the Jazz looks like in person next week. It’s on www.exomotion.com too. Then Kate will write up the requirements and the paperwork will be submitted to the insurance company for approval.
I’ve asked FOPonline folks if any children under 10 years is using a special stroller. I’ve already received some good feedback. Basically every one’s FOP progression varies. For whatever reason, Erin’s lower back fused now and not later. Oh well, we’ll just make the best of it.
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