I mentioned earlier that Erin’s preschool class is participating in a fundraising event for their school.  Each student made a snowman picture and Artwork For Education turned them into greeting cards.  They are available to order online.  Go to www.artworkforeducation.com, choose “Washington” for the state, then CLC AM/PM Preschool, and finally click on Killen.  Erin’s snowman is the bottom right image. 

 

Last night I saw Erin’s back is becoming more bumpy.  She came home yesterday from school and was very upset.  There was nothing I could do to console her.  I had to put her down for an early nap.  She did much better in the evening time but then she loves to watch Alan play Guitar Hero/Rockband on the Xbox360.  After every song she says, “Daddy rock out whoo hoo!”  Eventually she curled up on the couch and Daddy’s groupie fell fast asleep.  This morning she woke me up E-A-R-L-Y because her neck was hurting.  So today has been touch and go for her.

Tomorrow is an exciting day for us.  The Friz family from Burnaby B.C. will be here.  Karen and I have been in contact since we received Erin’s diagnosis.  Karen’s daughter Miranda was diagnosed about a year before Erin.  Since the two girls are close in age it has been our goal to get them together.  Karen, Pete, Miranda, and Owen will spend the day with us in Woodinville.  Alan and I have really enjoyed meeting other FOP families.  It’s helped us see that each case of FOP is different.  Yeah, it’s been tough at times but instead of dwelling on the negative aspect of FOP, we’ve seen so many positives.  Karen posted a newslink this morning on FOPonline and I have listed the link below.  It’s about Shane Terry, a little boy with FOP, from Watertown, NY.  A police department in California heard of his story and “adopted” him.  Very heartwarming….